This is a strange story for me to write. It will at times be a sad story, in many ways it will be happy and perhaps even funny. It will be an adventure that entails anxiety, flirting with danger, fortitude in the face of adversity and many attempts to look on the bright side. There will also no doubt be moments of anguish and despair, and a lot of uncertainty. It's a story that will hopefully be cathartic for me, but also interesting and perhaps informative or even entertaining for others.

Wednesday, April 21, 2010

Woohoo!!!!!

Good news... my scan was clear. Well, as good as! There are two nodes right in the middle of my chest that according to the radiologist's report are slightly bigger than 'normal'. They are 11mm and normally would be about 8 or 9mm. But considering that before my treatment they were 100mm, they've certainly shrunk a lot! My oncologist said that had I been a normal person (haha!) walking in off the street, he would look at the scans and say there was nothing wrong with me. So the extra 2mm is probably nothing and my chemo will definitely be over this Friday!

I have an appointment with a radiation specialist on the 2nd of May to discuss whether I need radiation just to be sure all the cancer cells are gone. I'm feeling pretty anxious about this appointment as I'm having very mixed feelings about having radiation. Obviously I'd like to be sure all the cancer is gone, but radiation has many risks. As it's my chest that would be getting radiated it can cause heart problems and there are also quite high risks of it causing secondary cancers later in life (being my chest this risk is particularly true for breast cancer).

So I'm feeling extremely relieved that the scan was clear and I won't have to have any more horrible chemo sessions. Hopefully I won't be too anxious for the next week and a half while waiting to find out about the radiation.

It feels like I was just writing about being two-thirds of the way through and in a few days I'll be saying that I'm six-sixths of the way! The whole thing! Completed! Done! Over!

6 comments:

Anonymous said...

Woo hoo indeed best news ever melXXXX0000

Ratel said...

Congratulations on the clear scan!

I had been wondering about what your scan results would be today while waiting on my own biopsy dignosis for a lymphoma growth in my abdomen. I'm hoping for a diffuse large B-cell lymphoma diagnosis which would call for a similar R CHOP treatment except I doubt I will take chemo as well as you since I have a very large nodular mass in the mesentery that is 8.5 x 6 inches and about 2 inches thick (Talk about fast growth!) When chemo starts breaking this tumor down, it will probably make me quite ill. Surprisingly, I was asymptomatic from the mass and the tumor was discovered during an MRI for an abdominal muscle tear.

I share your concerns about radiotherapy. If they recommend it, I'd want to know how specific the recommendation was to my case or were they just advising it for practically all their lymphoma patients. It seems to me the success of radiotherapy on lymphomas following chemo has yet to be statistically demonstrated. On the other hand, while 11mm is quite small, if it's oversize is due to cancer, it needs to be reduced. Hopefully, that node will continue to shrink and you won't have make a decision on radiation.

A former business partner of my father lives in Melbourne but I'm in Dallas which makes you about two-thirds of a day ahead of me. So, I guess it's good morning!

Anonymous said...

That's awesome news, we were thinking of you. :o) xox Rhona and Tim

Sarah said...

well done, I'm so pleased for you! xxx

Anonymous said...

Really fab progress Riaane. Challenging time re radiotherapy decision. Good luck Gorgeous.You have half of Melbourne cheering for you and Daniel. So glad chemo over for you. Lisa xxx

Tanya Cooke said...

Riaane, we are all over the moon about the positive news and the last treatment. The roll up of families on Friday to pay respect to the challenge you were going through was incredible- we were all with you, including the local paper!
We followed this with a brilliant Anzac service produced by 5T and spoke of your courage, fighting spirit and determination no matter what the odds as our own real hero- there wasn't a dry eye in the multi purpose room. Take care, plenty of sleep and lots of love and support to Daniel as well! love Tanya xoxo